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May 25, 2020 at 12:16 pm #36274Strokefocus AdminParticipant
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Mariaan EmmenisParticipant#36300
May 26, 2020 at 4:07 amMy daughter was 2 and a half at the time of my stroke.. she doesn’t remember any of it which I am very grateful for. She is the reason I work very hard at recovery… I have a little boy from after my stroke and he is my miracle baby.
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Phanuel MabbolaParticipant#36298
May 26, 2020 at 3:39 amGood morning beloved, we thank Good for the courageous moving and heart touching experiences of of lovely mothers, indeed this is very serious, as a stroke advocate this has brought the agent need for us to create a platform of raising awareness to the whole family during rehabilitation we need to find time to try and help the family understand about stroke where possible so that they may not be left out because it brings the survivors bad feeling when they are not understood by their family and friends.Regards.Phanuel Mabbola.National Stroke Aid Coordinator.Zambia
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clemsuderParticipant#36283
May 26, 2020 at 2:26 amI am glad you decided to share your story with all of us. It can give so many the hope they need to pick up what is left to them and remember it is not what we can do it is the joy we can share with each other that is the real reward. Love is about helping each other do the best we can for ourselves as well as for each other. Do not fall into the trap of others expectations, but adjust your own expectations to what you can. Our father wants you to do the best you can with the gifts you have to raise the joy and quality of your life. Remember it does not have to be so deep or philosophical but most simple. Consider what god said to Adam and Eve, “Who told you, you were naked?”
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Kele MotshwaneParticipant#36281
May 26, 2020 at 2:07 amThis is indeed an emotional topic, I was lucky that my daughter was 18 at the time and she had taken a gap year and was meant to go to Tertiary the following year and because of my busy work schedule I didn’t spend much time with my kids except on Weekends and with my daughter she was the one who took the role of keeping the family together and my son was 15 years at the time and in high school and he wasn’t doing well at all the school told me later after I was discharged from The Rehabilitation hospital that they thought he was going mad. When I was at the hospital my daughter came on a daily basis to give me a sponge bath and we spent a lot of time together and she became more of my caregiver as she knew which medication I had to take when and I am actually grateful for the time I got to spend with her as we bonded in a way that we had never done before and she had even decided to cancel her dream of going to University wanting to take care of me by herself and we had to convince her that I was going to be fine with her at University as I had my elderly helper and my husband and son at home to take care of me. There were times when my emotions would be all over the place and my son was the one who would sit down with me and tell me that things could have been worse and it’s okay to cry whenever I felt like crying as I was trying to bottle up all the emotions not wanting to hurt him and my husband as they were more broken about my stroke. The kind of things I used to do for them like baking and cooking their favourite meals all that went out of the window because of being forgetful I have nearly caused a lot of damage to the house like burning meals to ashes and I was then banned from cooking and even though I understood their concern I felt useless for not being able to do minimal task. Things are much better now as it has been 7 years 7 months post stroke and I am able to cook and not forget that I have cooked. I still have one functional hand but as long as the ingredients are prepared for me I am able to cook a meal for my family and now during the lock down I have experimented with a number of dishes that I got from Pinterest and the kids favourite biscuits are now prepared by them as I supervised them when they one day said that they miss the biscuits that I used to make for them. Unfortunately healing is a long process as there are times when I feel like they loose their patience with me because I will be sharing something with them and they will tell me that you are now saying that for the 5th time and it kind of upset me and I then apologize for telling them something over and over again. I heard that when I was sick they were praying for God to spare my life even if I end up on a wheelchair for the remainder of my life but thanks God that I am able to walk on my own. I feel like they are still struggling to get used to the new me even though they prayed for me to be spared in whatever condition so I sometimes ask them if they are not happy with the way God healed me. I have sometimes apologized for having a stroke because I am no longer the person that I used to be to them and I sometimes feel like they see me as a person whose brain doesn’t function to its full capacity and before I used to wish that I had not survived but I realized that I was spared for a reason and whenever I come across anyone willing to listen to me I share my story about my stroke journey and advice them about the signs and how they can identify someone having a stroke and preaching that there is life after a stroke.
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